Sunday, January 13, 2013

It's Me Again!

Hi, it's me again.
The chick with the cancer.
The bald chick.
Yeah...that chick.

What's been going on in the lovely state of VA? Chemo, that's what. Round 3. The one I have NOT looked forward to.

My oncologist sat & listened to all of my concerns. He assured me that some of the things I've heard won't happen to me because it's different medicine. But that I should be concerned about others. What kinds of things, you ask?

Fingernails - my body may, at any moment, decide that my fingernails need to go. At this point, they are no different than hair.

Fatigue - I believe his exact words were, "Fatigue is cumulative" which is doc speak for "You're gonna be f'ing tired for a long time."

Tingling feet/hands - This fun side-effect started last night. It wasn't so much a tingle as it felt like someone lit the bottom of my foot on fire. Sure, some may call that a tingle. I call it pain.

Illness - It's flu season people. Peak flu season. And VA has widespread flu this year. How do I avoid getting the flu? Doc says treat everything I touch like it has the flu. Treat everyone I meet in a store, restaurant, on the street, like they have the flu. Avoid shopping/people altogther if possible. This can be done. Face it...there aren't too many people I like anyway. And I have online shopping, and a husband who can follow a list like you would not believe!

My period - Sure, no one wants to talk about the blood bath in the middle of the month. Mine was supposed to disappear. And for a few glorious days, I thought it had. And then that bitch snuck up on me and WHAM! Go get a pad, lady. You're gonna need it. I relayed this info to the nurse, along with the number of times I empty my bladder & bowels, because these people LOVE to hear all of the juicy details. The doctor walked in and said, "I hear we had a travesty." I said, "Yes, my period. Dammit."

Anyway, away from bodily functions to chemo #3.

Someone explain to me how I got stuck with the nurse from hell? It doesn't really drum up lots of confidence when she has to keep asking what to do and where stuff is. Now, I know all nursing wards are different and you aren't used to things yet, but still. I do not want to be the guinea pig when dealing with the chemicals that are chemotherapy.

When accessing my port, which she must not do much in her inpatient surgical ward, she missed. Missed. Yes...MISSED my port with that giant fucking needle in her hand. And I do not exaggerate when I say this needle is at least 2" long. Quite possibly even longer. It got in with little more than the feeling of pressure/no pain thanks to my awesome numbing cream that I apply before going in. Sounds okay, right? I didn't feel it MISS, so it couldn't have been that bad, right? WRONG! When the nurse started trying to make sure the blood would come out, I got a horrible "OMG! OMG! PAIN! SOMETHING IS WRONG!" kind of pain in my chest. So, she sits with this needle half in/half out while trying to figure out WTH to do with me. She needed a new tray, but couldn't leave me hanging (literally). Thank goodness Nurse Jackie came to the rescue. And thank goodness Nurse Jackie watched over her should like a freakin' hawk when she accessed the port again. And thank goodness Nurse Jackie was our 2nd med checker before the newbie started infecting me with poison.

After I was done with meds, I walked a few laps around the infusion center to get my BP back up. No way was I giving them a reason to keep me any longer!

Friday night wasn't bad. I ate. All good. Nausea was minimal.

Saturday consisted of lots of sleeping. Tried to eat, but didn't get much down. Nausea was a little worse.

Sunday, Neulasta shot at 8:30 am at a hospital an hour away, which meant we had to get the kids up at 6:30. Fun. Did a quick shopping trip through Dollar Tree, picking up only what I needed, leaving behind anything that looked like it could contain the flu bug. Much hand sanitizer was used. We got home to find our power out. It stayed out for, what, 5 hours? Grilled some burgers. YAY for protein! I napped. The kids played outside. Ate some chicken & rice. Some came back for round two. Nausea varies depending on position. As long as I don't turn my head from side to side, stand up, sit down, turn around, or walk, I'm okay ;)

So, tomorrow, I fully expect some sore bones. If not tomorrow, in the coming days. I'm sure those days will consist of lots of heating pads, pain meds, and naps. Hopefully the little guy cooperates.

Upcoming appointments:
Wednesday, Jan 16 - Radiation Oncologist to discuss possible radiation
Friday, Feb. 1 - Chemo #4 - quite possibly the LAST ONE!
2-3 weeks after chemo, repeat PET scan to see what's left (hopefully NOTHING)

Peace out...
Suzi

P.S. Excuse the rambling, run-on sentences, and occasional misspelled word. My Ambien is kickin' in!

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